Welcome to our website, created in February 2007, by and for people with CAD! Three of us met through NORD’s networking system during the early 2000’s and have been sharing information, experiences, and concerns ever since….
It is our goal to reach out to others with CAD to offer them an opportunity for support and encouragement.
– NORD is the USA’s National Organization for Rare Disorders –
If you are re-visiting us……..look at the Recent Additions page
The information and views expressed on this site are those of three non-medical people, all of whom have Cold Agglutinin Disease (CAD), a type of Autoimmune Hemolytic Anemia. At times we have used medical terminology. We have tried to be as accurate as we can in presenting this information. Always check with your doctor before making any medical decisions since he/she best knows your case.
Due to the deep sense of isolation each of us experienced upon diagnosis, we felt that a site would be helpful where Cold Agglutinin Disease sufferers (we are going to call ourselves CADdys) could obtain information, and “talk” to each other. It certainly would have been beneficial to us, especially during the early years while we adjusted our lives to the new “Rules” we now live by.
Cold Agglutinin Disease
CAD is also known by a number of other names:
Autoimmune Hemolytic (Anaemia)
Cold Agglutinin Autoimmune Hemolytic Anemia (CAIHA)
Cold Haemagglutinin Disease (CHD)
Coombs Positive Hemolytic Anemia
Primary Chronic Cold Agglutinin Disease
Other references include:
Cold-Antibody Disease, Idiopathic Autoimmmune Hemolytic Anemia, Immune-mediatd Hemolytic Anemia (IMHA)
You can use the various search engines such as Google.com, Yahoo.com, and Ask.com to access these names and find a wealth of information.
The statistics on the prevalence of Cold Agglutinin Disease are not precise, however it is believed that it affects about 1 in 60,000 people, according to the Norway study of 86 CAD patients.
Actually you are a millionaire! The rate of incidence is about 1 in one-million per year. So in a country of 8 million, you can expect to get 8 new cases of CAD each year…….look for them when you next visit your Doctor……
We offer some suggestions on how to look after yourself, give you more details about Cold Agglutinin Disease, provide a list of other CADdys, show some of our “stories”, and give you news about changes occurring in the treatment of CAD. Also, take a look at our Links page for additional sites which you may find of interest.
Facebook has a group named CADdy Chatter which you are welcome to join.
We hope you enjoy reading the material, and take heart from the fact that there are others trying to cope with similar issues.
Please use the Contact Us page. We would really like to hear from you!