New Entries in our RECENT CHANGES page
We have added links for two important papers from True North Therapeutics, San Fransisco, in our RECENT CHANGES page. In 2014 TNT published a paper entitled: “TNT003, an inhibitor of the serine protease C1s, prevents complement activation induced by cold agglutinins”, and in 2015 another entitled: Safety, Tolerability and Activity of TNT009 in Healthy Volunteers and Patients With Complement Mediated Disorders (TNT009-01).

(Feb, 2016>

Dear CADdys living in the U.S:
I wanted to let you know about another opportunity with True North Therapeutics, the same group we collaborated with a couple of years ago to study our blood samples, and that led to a very impactful research paper on CAD.   They are creating a patient registry for CAD, called the COMPASS Registry.

To tell you more about the registry: it will be nationwide in scope, across all 50 states in the U.S. This registry will enable researchers to create a deeper understanding of the biology of CAD and the consequences for patients of living with this disease.

There are several benefits of joining the registry:
•         Integrate your CAD-related electronic health records all in one place, viewable on the COMPASS registry
•        Take a short health-related survey: think about your disease in a new way and compare your answers to others in the registry
•        Have a blood test at the Quest Patient Services Center nearest you, and support the development of new diagnostic tests and new medicines using what is learned.
•        This will be at no cost to you, and you will receive a $50 gift card to compensate you for your travel and time each time you give a blood sample.

Your information will be stored in a secure database, built and maintained by PatientCrossroads, a medical information technology company that has created and maintained similar patient registries for over 250 diseases.

You can click on the link here to register: I hope you will decide to participate in this exciting opportunity.

Best Wishes,

Betty Usdan             (Feb, 2016)