“In order to protect your privacy since there have been unsolicited contacts, we have now cancelled our CADdy List. If you have or a family member has Cold or Warm Agglutinin Disease, please ask to join our group, CADdy CHATTER, on Facebook.com”
To tell you more about the registry: it will be nationwide in scope, across all 50 states in the U.S. This registry will enable researchers to create a deeper understanding of the biology of CAD and the consequences for patients of living with this disease.
There are several benefits of joining the registry:
• Integrate your CAD-related electronic health records all in one place, viewable on the COMPASS registry
• Take a short health-related survey: think about your disease in a new way and compare your answers to others in the registry
• Have a blood test at the Quest Patient Services Center nearest you, and support the development of new diagnostic tests and new medicines using what is learned.
• This will be at no cost to you, and you will receive a $50 gift card to compensate you for your travel and time each time you give a blood sample.
Your information will be stored in a secure database, built and maintained by PatientCrossroads, a medical information technology company that has created and maintained similar patient registries for over 250 diseases.
You can click on the link here to register: http://www.compassregistry.org I hope you will decide to participate in this exciting opportunity.
Betty Usdan (Feb, 2016)