Recent Additions

Below we have provided a list of significant changes to the site. We hope this will assist you in keeping up-to-date.

  9aug10   Our Links page has been updated to remove outdated links, and add new ones.

9aug10   Keith Woods added to CADdys

4aug10   Published 2010 - Newly completed study by Dr Sigbjorn Berentsen et al from Norway.

10jul10      Laurie Riffle has added good news to her story

21jun10     Jane Doe added to CADdys and Stories

11may10   Dorothy Ingerson added to CADdys and Stories

11may10   Patricia Bradley added to CADdys

9may10     Marta Loppery added to CADdys and Stories

9may10   Betty Usdan has updated her story

8may10   Annegret Winsor added to CADdys and Stories

8may10   Chris Morgan's story updated

8may10   James Rockwell added to CADdys

8may10   Evelyn Korkmaz added to CADdys

5apr10      Kevin Sidle has an 8 year old daughter with CAD, and would like to contact anyone else who has a child with CAD. Contact Kevin at ksidle1@jhmi.edu

1apr10      Chris Morgan added to CADdys and Stories

16mar10   Madeline Krenek added to CADdys

18feb10    Dennis Fotopoulos added to  CADdys and Stories

11feb10   Judy Filipich added to CADdys and Stories

11feb10   Graeme Hore has added an update to his story

23jan10   Barbara & Jay Jablonski added to CADdys and Stories

11jan10   Joni  Gerking added to CADdys

30dec09   Juhi Nelson added to CADdys

22dec09   Donald Bowman added to CADdys and Stories

8dec09   Barbara Sparks added to CADdys and Stories

2dec09   Lesley Clark added to CADdys

20nov09
We've been requested to post the following clinical trial but WE DO NOT ENDORSE THE USE OF THIS DRUG FOR CAD.

For Cold Agglutinin Disease patients in Germany, Dr. Alexander Roth, Dept of Hematology, University Hospital Essen, Germany is planning a clinical trial, (DECADE Trial), starting the beginning of 2010 in centers in Germany using eculizumab for the treatment of CAD.  Contact:  alexander.roeth@uk-essen.de

5nov09     Judith Desfosses added to CADdys

14sep09   Joanne Scott added to CADdys

7aug09   Ruth Ann Ryan added to CADdys and Stories

6aug09   Peter DeNardis added to CADdys

4aug09   Lael Van Riper added to CADdys and Stories

24jul09   Some CADdys have Waldenstrőm Macroglobulinemia, a malignant disorder of the blood closely related to Lymphoma, so we have added two valuable links.  We have been linked on their sites as well.

Bing Center for Waldenstrom's Research, Dana Farber/Harvard Cancer Center
http://www.wmprogram.org/Links/Default.asp

Waldenstrom's Macroglobulinemia
http://www.stevenptreon.com/links.htm

27jun09   We have been advised that John Harms has died. His story has an addition.

16Jun09   Mary Puckett added to CADdys

31Mar09   Menna Edwards added to CADdys

11Mar09  Valerie Debaix added to CADdys and Stories

2Feb09    Jan Rudsenske added to CADdys

26Jan09   Information from a CADdy has been added to the Cold Agglutinin Disease page...it is currently the second to last paragraph.

26Jan09   Jose Silva added to CADdys

22Jan09   Links to two recent articles have been added to the links page.

Rituximab-How it Works and Why Resistance Occurs
New Anti-CD20 Monoclonal Antibodies

15Jan09   Hilary G. Derby added to CADdys

1Jan09     Judith Hubbard added to Stories & CADdys

18Dec08  Mary Stearn  added to CADdys

5Dec08    Roberta Franklin added to Stories

3Dec08    Pamela Bedford added to Stories & CADdys

5Nov08    Steve Hearne added to Stories & CADdys

5Nov08    Joe Sergio added to Stories & CADdys

29Oct08   Roberta Franklin added to Stories & CADdys

10Oct08   June Davidson added to CADdys

3Sep08    Barbara Southall added to Stories &  CADdys

23Aug08   Rosa Raveneau added to CADdys

25Jul08     Mary Lou Lydecker added to Stories & CADdys

3Jun08      Rod Coomer added to Stories & CADdys

3May08     Mogamat Cassiem Samaai added to CADdys

20Apr08    Carol Vanchina added to CADdys

21Mar08    Barbara Johnson added to Stories

11Mar08    Roberta Franklin added to CADdys

4Mar08      Steve Hearn added to CADdys

28Feb08     Heather Orr has updated her Story

12Feb08     Inge Andersen added to Stories & CADdys

5Feb08      Lauren Kenny added to CADdys

31Jan08    Tom Kiedrowski added to CADdys

24Jan08     Laurie Riffle updated her story regarding her experience with a supplement

17Jan08     Barb Johnson added to CADdys

11Jan08    Shari Thomas added to CADdys
                    Gloria Storey added to Stories

7Jan08       Cécile POIRRIER-GUILMIN added to Stories and CAddys
                    Rosie Sherman added to CADdys
                    Gim Ho Thio added to CADdys

6Dec07      Changes made to Links, Treatment Options, Cold Agglutinin  Disease, Managing CAD,
                    and Rituximab pages to bring them up to date with current knowledge.

20Nov07    Janice Frishkopf added to Stories & CADdys

31Oct07     Eleanor Betz added to Stories & CADdys

23Oct07     Two newly published articles on CAD by Norway Researchers

Primary CAD - an update .....by Sigbjørn Berentsen, Klaus Beiske, & Geir E, Tjonnfjord
B Lymphocytes as targets .....by Sigbjørn Berentsen, Elling Ulvestad, & Geir E, Tjonnfjord

Go to the Links page to view these reports.

14Oct07      Rebekah Marshall added to CADdys

14Sep07     Ann Close added to Stories & CADdys

14Sep07     Donna Catroppo added to CADdys

29Aug07     Nina Tartakoff added to Stories & CADdys

15Aug07     Recent Additions page added