The Cold Agglutinin Disease Foundation, in collaboration with Carenity, an online patient community, has developed a survey for patients living with Cold Agglutinin Disease in the US. The aim of this survey is to better understand patients’ experience living with Cold Agglutinin Disease. What are the symptoms? Which treatments do patients take? How do patients live with their disease?
This survey includes one questionnaire to be completed at one time and is estimated to take around 20 minutes to complete.
Every response collected may contribute to the improvement of medical knowledge on Cold Agglutinin Disease and on how the disease may affect daily life in the light of the patient perspective. Results will be published in medical congresses or journals, and a summary of these published results will be shared with all participants.
If you are interested in sharing your experience and advancing research, please follow this link:
Have a great day,
Cold Agglutinin Disease Foundation and the Carenity Team