Welcome to the CAD Foundation

Cold Agglutinin Disease Foundation Inc, CADF was created in 2019 as a non-profit, (501)(c)(3) corporation. It is dedicated to the advancement of knowledge about Cold Agglutinin Disease for the medical profession, patients and caregivers. 

CADF’s purpose is to foster and increase public awareness and education regarding the diagnosis, management and treatment of this rare disease, which in turn will enhance the quality of life of those affected by it by providing a  continuously improving system of education, information and opportunities for those diagnosed or treating patients with CAD. 

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In 2007, there was a shortage of information regarding Cold Agglutinin Disease and a significant need to educate and support patients with this rare blood disorder. The founder, a CAD patient herself, with the aid of two others she had met through the National Organization for Rare Disorders (NORD), formed coldagglutinindisease.org.
The goal was to serve as a hub of information, support and encouragement for patients and caregivers globally.   
The facebook.com group, CADdy CHATTER, an outgrowth of the website, was created in 2009.  It now has a worldwide membership of over 1000 very caring CAD patients and caregivers who can directly communicate with each other regarding all aspects of CAD.


CADdy Chatter on Facebook.com is our closed group exclusively for CAD Patients and Family, where you can directly interact with 1000+ other "CADdy's" from around the world. 

Your support and contributions will enable us to continue our commitment to serve the community of CAD patients, their families, caregivers and medical providers by facilitating communication between patients worldwide and offering:  

• disease-specific education and care suggestions
• treatment options
• clinical trial information and
• links to appropriate related resources
• medical resource recommendations

A rare disease is defined as a condition that affects fewer than 200,000 people.  It is estimated that there are approximately 12,000 people diagnosed with CAD in North America, South America, Europe, Australia, and Asia.  Cold Agglutinin Disease Foundation, Inc. engages in all permissible fundraising activities and solicitation of grants and donations to meet the goals of the Foundation!