Privacy & Policy

Liability/Disclaimer Statement

Our website, social media and webinar channels are provided for informational resources only.

CADF, Inc . (Cold Agglutinin Disease Foundation, Inc., “CADF”) cannot assume liability or responsibility for any information, posts, social media and webinars contained on this or third party sites, or the reliance of the information or posts. 

We at CADF may have opportunities to share information, photos, videos, stories and other about CAD, and in that spirit, you recognize that there may be discussions that are personal in nature (e.g., specifics relating to a patient’s conditions or care partners experience). You hereby authorize, release and disclose your personal information as per this Liability/Disclaimer and Privacy and Policy Statement.

Please consult with your own medical providers about any of the suggested material or content which you may find to be of interest on this website, social media or webinar channels that are found within links to third parties, all of which we have provided solely for your convenience and further reference.

Treatments and approaches to managing CAD, which are described on our website, social media or webinar channels are intended simply as a guide for reference and discussion. This website, social media or webinar channels and its content are not intended to be a comprehensive or all-inclusive guide to same and may not be appropriate for your individual situation. 

Please be aware that changed circumstances after the date of publication of any information on our website, social media or webinar channels may impact the accuracy of the Information which has been posted. The Information may change without notice, and CADF is not in any way liable for the accuracy of any information printed and stored or in any way interpreted and used by a user. Information that we post also does not necessarily reflect any policies, procedures, standards or guidelines of the organization of CADF.

Nothing which appears on this website, social media and webinar channels should serve as a substitute for medical care or advice. Any information provided on our website, social media or webinar channels is intended to serve solely as a resource for informational purposes only and is not intended to provide any medical advice, opinions or conclusions. Your doctor and other health care providers are the best resource when it comes to medical advice. CADF urges you to contact your healthcare providers should you require diagnosis or treatment and/or have specific questions related to diagnosis, side effect symptoms, drug treatment, or any other medical and health related questions. All treatments, including blood transfusions, can have side effects, some known and others yet to be discovered. Please consult with your own medical providers about any of the suggested material or content that you may find to be of interest on this website or that found within links to third parties which we provide solely for your convenience and further reference.

These links connect to websites, social media or webinar channels maintained by third parties over which CADF has no control. Providing links does not imply any endorsement, non-endorsement support or commercial gain by CADF. CADF cannot assume liability or responsibility for the accuracy, effectiveness, reliability or correctness of any information that may be provided by third party websites, social media or webinar channels or for the correctness of links or references to information sources (including Internet sites) outside of the CADF website. Due to the changing nature of the internet content, it is the responsibility of the users to make their own investigations, decisions, and inquiries about the information retrieved from other internet sites. 

Privacy Policy

Cold Agglutinin Disease Foundation Inc. and CADdy CHATTER reserves the right to block users who violate or misuse these guidelines from our site and our pages. We also reserve the right to take down internet sites, group Facebook pages and other social media sites (and its contents) that belong to us at any time. We reserve the right to modify these guidelines at our sole discretion without notice.

CADF and CADdy CHATTER will not disclose your personal information to any other entity or organisation without your prior consent or for profit.

Third parties may only have access to your personal information

We may disclose information about you, if we are required to do so by law or legal process, to law enforcement authorities or other government officials based on a lawful disclosure request, when we believe disclosure is necessary or appropriate to prevent physical harm or financial loss, or in connection with an investigation of suspected or actual fraudulent or illegal activity, or when you authorize us to.

Where We Store (and Access) Your Personal Data

· We will take all steps reasonably necessary to ensure that your personal information is treated securely in accordance with this Privacy Policy.

· You have the right to access and consult, modify and update your personal data, including an opt out or unsubscribe option. 

Collection of Personal Information Prior to January 27,2020

Prior to January 27, 2020 if you shared your personal information for a "database" from posts requesting you to provide it, within CADdy Chatter or on coldagglutinindisease.org and have questions as to how your personal information is being protected or shared  please contact us at info@cadfadvocacy.org and we will provide contact information.

CADF, a 501(c)(3) organization, is a patient advocacy organization dedicated to those diagnosed with CAD, the organizations that serve CAD, along with more than 900+ members in CADdy Chatter and is committed to the identification, treatment and cure through programs of education, advocacy, research and patient services.