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RARE REVOLUTION SERIES

IT'S TIME TO TURN THE TIDE!

 To bring about a dramatic and wide reaching change in conditions and attitudes for the rare disease community. Creating engaging awareness solutions.  RARE-Rev-inar. Join us and experts to find out more about the importance of shared decision making, the role of multi-disciplinary teams and more.  

Rare Revolution Series - Sponsored by Sanofi

Understanding CAD

Understanding CAD

Understanding CAD

For our next RARE Rev-inar we will be joined by experts in the field of cold agglutinin disease. CAD is a rare auto-immune disease requiring treatment and life changes. Sponsored by @Sanofi

Join us to find out more https://bit.ly/Sanofi-UnderstandingCAD 

Understanding CAD

Understanding CAD

Understanding CAD

‘Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens’ is the topic of our next RARE-Rev-inar. Join us and experts to find out more about the importance of shared decision making, the role of multi-disciplinary teams and more. 

Register free here:

 https://bit.ly/Sanofi-UnderstandingCAD 

What is CAD

Understanding CAD

What is CAD

What is cold agglutinin disease and how is it diagnosed? Find out more about the acute symptoms and long-term chronic impact at ‘Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens’ webinar. 

Register free here:

https://bit.ly/Sanofi-UnderstandingCAD

Rare revolution Series

Prof Catherine Broome

Prof Catherine Broome

Prof Catherine Broome

Pleased to have Prof Catherine Broome join our panel discussion on Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens. Sponsored by @Sanofi

Register at:

 https://bit.ly/Sanofi-UnderstandingCAD 

Speaker Jörg Freitag

Prof Catherine Broome

Prof Catherine Broome

Jörg is a busy retiree living in Rhineland-Palatinate, Germany. He has been living with cold agglutinin disease for more than six years now, but it took several years before he was diagnosed. Join Jörg and our expert panel for ‘Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens’. Register at:https://bit.ly/Sanofi-UnderstandingCAD 

CAD Foundation President

CAD Foundation President

CAD Foundation President

The CAD Foundation is one of the few patient organisations worldwide supporting people living with CAD. Join Pat Watson, president of the CAD Foundation as part of our expert panel on ‘Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens’ as we look at the biggest challenges for people living with CAD. Register at:

https://bit.ly/Sanofi-UnderstandingCAD 

All Speakers

CAD Foundation President

CAD Foundation President

We are delighted to welcome such a knowledgeable and expert panel on ‘Understanding cold agglutinin disease (CAD) from a multi-stakeholder lens’ as we look at the biggest challenges for people living with CAD. Sponsored by @Sanofi. Register at https://bit.ly/Sanofi-UnderstandingCAD 

Hello

Elevate Your Advocacy at the Week in RARE!

Week in RARE is just around the corner, and we couldn't be more thrilled to welcome attendees from all over.  

Find out more

Week in RARE is just around the corner

Elevate Your Advocacy at the Week in RARE!

Join us and attend the 2023 Global Genes Week in RARE event encompassing two rare advocate-facing events, the RARE Health Equity Forum and the RARE Advocacy Summit.  The events are taking place between September 18-21 at the Sheraton San Diego Hotel & Marina! Elevate your rare disease advocacy learnings with sessions that will provide you with insights about the latest in rare disease innovations, transforming the rare disease landscape and advancing health equity, best practices for advocating on an individual and organizational level, and actionable strategies you can take home and implement immediately to accelerate change. Join us for networking, learning, and inspiration. Learn More. 

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