Welcome to our website for Cold Agglutinin Disease (CAD) patients and their families! Cold Agglutinin Disease Foundation, Inc. (CADF) was formed by persons directly affected by CAD.
Cold Agglutinin Disease (CAD), a rare and incurable disease, is a form of acquired autoimmune hemolytic anemia in which the body’s immune system mistakenly attacks and destroys its own red blood cells.
Daily living is significantly impacted by CAD since patients suffer from symptoms of low hemoglobin resulting in varying degrees of anemia. CAD can lead to blood clots, heart attack, strokes and possibly dementia. Patients always need to be vigilant about keeping warm to help reduce the likelihood of activating the cold-mediated antibodies, which cause cell death.
The Cold Agglutinin Disease Foundation (CADF) has obtained the invaluable endorsement of two distinguished physicians who specifically support and encourage our establishing this dedicated non-profit foundation for advancing education and research about CAD.
Sigbjorn Berentsen, MD, PhD
Hematologist and Researcher
Dept. of Research and Innovation
Haugesund Hospital, Norway
Richard R. Furman, MD
Weill Cornell Medicine
New York Presbyterian Hospital
Both are notable and recognized in the field of CAD treatment and research.
Cold Agglutinin Disease Foundation Inc. (CADF) is a dedicated non-profit foundation, to assist in and expedite correct diagnosis and care management of cold agglutinin disease (CAD) and are committed to creating a healthier life for the CAD community of patients and educating those diagnosed, medical providers; primary care physicians, hematologists, nurses, and lab technicians.
CADF does engage in all permissible fundraising activities and solicitation of grants and donations to meet the goals of the foundation.
In February 2007 - 3 CAD patients who met through NORD (National Organization for Rare Disorders) started the journey to offer information, support and encouragement to the CADdy Community and created a website and Facebook Group Page (CADdy Chatter), that today has 900+ group members from around the world. In 2019 the Cold Agglutinin Disease Foundation (CADF) was formed and is a 501c(3) non-profit corporation dedicated to the advancement of knowledge about Cold Agglutinin Disease for the medical profession and patients.
CADF’s purpose is to foster and increase public awareness and education regarding the diagnosis, management and treatment of this rare disease, which in turn will enhance the quality of life of those affected by it by providing a continuously improving system of education, information and opportunities for those diagnosed or treating patients with CAD.
CADF does engage in all permissible fundraising activities and solicitation of grants and donations to meet the goals of the foundation
Your support and contributions will enable us to continue our commitment to servicing the community of CAD patients, their families, caregivers and medical providers by facilitating communication between patients worldwide, offering disease-specific education, care suggestions, treatment options, clinical trial information, and links to appropriate related resources.
A rare disease is defined as a condition that affects fewer than 200,000 people. It is estimated that between 1-9 in 1 million people are diagnosed with Secondary CAD (Primary CAD is fewer) in North America and Europe.
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