RARE DISEASE DAY
FEBRUARY 28TH 2026
Rare disease day happens every year on the last day of February, to bring awareness
that rare diseases, collectively, are not uncommon. There are 300 million people
worldwide living with a rare disease. Millions more are touched by those of us with a
rare disease - families, caregivers, friends, researchers, and healthcare
professionals – in ways they never would have anticipated.
There are so many different causes of rare diseases, and several have no available
treatment. Rare disease day shines a light to raise awareness, support advocacy,
and drive research forward. Every action, no matter how small, helps move us
closer to solutions.
You can participate and make a difference by posting on your private FB page with
a banner, or a post telling your personal story. People are also encouraged to
Share Your Colors in The Global Chain of Lights. In an effort of global solidarity,
you are invited to light or decorate your home with the Rare Disease Day colors-
pink, green, blue and purple - at 7 PM your local time on February 28, 2026.
For more ways to get involved, visit https://www.rarediseaseday.org/ .
WAYS TO GET INVOLVED
Social Media Post
Social Media Post
Social Media Post
Share your story using the Rare is Strong Facebook Post
Facebook Banner
Social Media Post
Social Media Post
Download the image above and upload it to your personal Facebook Banner
Share Your Colors
Social Media Post
Share Your Colors
Decorate your home with the Rare Disease Day colors -
pink, green, blue and purple - at 7 PM your local time on February 28, 2026.
Community connection scholarship
Community Connection Scholarship
In honor of #RareDiseaseDay , our partners at @Bionews_rare are offering two $2,500 Community Connection Scholarships to help rare disease patients and caregivers attend the advocacy or medical conferences that matter most to them.We know how life-changing it is when you meet others who "just get it." That’s why we’re thrilled to share this travel scholarship from our partner @Bionews_rare. Whether it’s a medical meeting to learn about new research or an advocacy summit to find your "rare family," this is for you.
- Eligibility: Patients or caregivers (18+) impacted by a rare disease, located in the U.S.
- Deadline to apply: March 6, 2026
- How to apply: Scan the QR code or visit the link below to share your story