RARE DISEASE DAY

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Rare disease day happens every year on the last day of February, to bring awareness

that rare diseases, collectively, are not uncommon. There are 300 million people

worldwide living with a rare disease. Millions more are touched by those of us with a

rare disease - families, caregivers, friends, researchers, and healthcare

professionals – in ways they never would have anticipated.

There are so many different causes of rare diseases, and several have no available

treatment. Rare disease day shines a light to raise awareness, support advocacy,

and drive research forward. Every action, no matter how small, helps move us

closer to solutions.

You can participate and make a difference by posting on your private FB page with

a banner, or a post telling your personal story. People are also encouraged to

Share Your Colors in The Global Chain of Lights. In an effort of global solidarity,

you are invited to light or decorate your home with the Rare Disease Day colors-

pink, green, blue and purple - at 7 PM your local time on February 28, 2026.

For more ways to get involved, visit https://www.rarediseaseday.org/ .